Resources

The resources listed below are some of the websites on the Internet that you might find helpful; these are included because they are widely known and address a variety of needs that visitors to this website may have. We have used quotation marks to indicate material that was drawn directly from its website.

Brain Injury Research Center (BIRC)
Mount Sinai School of Medicine, Department of Rehabilitation Medicine
New York, NY
1-212-659-9372
www.tbicentral.org

The BIRC has a sole focus on conducting research addressing the challenges of traumatic brain injury, or TBI. It does this primarily through three federal grants:

  • The Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions
  • The New York Traumatic Brain Injury Model System
  • The Mount Sinai Injury Control Research Center

This website provides basic information about TBI as well as educational materials for people with TBI that are free to download.


Brain Injury Association of America (BIAA)
1-800-444-6443
www.biausa.org

The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families. This website provides linkages to, and other contact information for, the state and local chapters of the brain injury association. The chapters are likely good sources for finding TBI expertise in local areas.


Traumatic Brain Injury National Data and Statistics Center
www.tbindsc.org

This website, although aimed at professionals, provides linkages to each of the TBI Model System Centers that are located in 14 sites in the U.S. Each of these Centers offers state-of-the-art medical care and may prove to be excellent resources for locating TBI expertise in your community.


Brain Trauma Foundation
1-212-772-0608
www.braintrauma.org

The Brain Trauma Foundation was founded to improve the outcome of TBI patients by developing best practice guidelines, conducting clinical research and educating medical personnel. This website is primarily aimed at professionals, but also provides links to web-based resources useful to people with TBI, at the following link: http://www.braintrauma.org/site/PageServer?pagename=Resources


National Center for Injury Prevention Control
1-800-232-4636
www.cdc.gov/ncipc/tbi/TBI.htm

In June 1992, the Centers for Disease Control and Prevention (CDC) established the National Center for Injury Prevention and Control (NCIPC). As the lead federal agency for injury prevention, NCIPC works closely with other federal agencies; national, state, and local organizations; state and local health departments; and research institutions. The NCIPC website is an excellent source for information about TBI, useful both to professionals and to people with TBI.


National Institute of Neurological Disorders and Stroke
1-800-352-9424
www.ninds.nih.gov/disorders/tbi/tbi.htm

The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two-dozen research institutes and centers that comprise the National Institutes of Health (NIH). This website provides general information on TBI and linkages to organizations that may serve as resources to people with TBI.


The Perspectives Network
www.tbi.org

The Perspectives Network, Inc.'s primary focus is positive communication between persons with brain injury, family members/caregivers/friends of persons with brain injury, those many professionals who treat persons with brain injury and community members in order to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury. This is a website that provides linkages to a variety of resources for people with TBI.


Brain Injury Home
www.tbihome.org

TBI Home is a peer support website for people living with brain injury, their families and friends to support each other by sharing their experiences. This website offers message boards, chat rooms, and links to TBI-related resources.


Brain Injury Chat Rooms
www.braininjurychat.org

This website's goal is "Peer Support for People Living With Brain Injury." As its name implies, it offers chat rooms, as well as links to other resources and general information for people with TBI.


Brain Injury Resources
www.braininjuryresources.org

Although this website offers some general information about TBI, it primarily provides linkages to resources for people with TBI, including both for-profit as well as informational resources.


The Brain Injury Information Network
www.tbinet.org

This website primarily is a source to enroll in a brain injury-related support group that "meets" via e-mail messages (using list serves).


Brain Injury Resource Center
1-206-621-8558
www.headinjury.com/resources.htm

As its name implies, this website offers a variety of resources, including general information about TBI and linkages to organizations offering help and services to people with TBI.


Sarah Jane Brain Foundation/Project
www.thebrainproject.org

The Sarah Jane Brain Foundation (SJBF) was initiated by Patrick Donohue, father of Sarah Jane, after his infant daughter was shaken by her baby nurse, resulting in multiple injuries, including a severe traumatic brain injury. Patrick, working in collaboration with Pediatric Acquired Brain Injury experts nationwide, produced the first-ever model system for pediatric brain injury, the Pediatric Acquired Brain Injury (PABI) Plan. This is a legislative effort which anticipates development of at least 25 SJBF Centers across the country, and will result in access to the latest advances in brain injury care, accessible by patients, families and brain injury professionals.


BrainLine.org
http://www.brainline.org

Traumatic brain injury resource dedicated to the prevention, treatment and living with traumatic brain injury. Free videos, multimedia, resources and tools to help those people living with TBI, family & friends and professionals.